Data Sharing in Public Health Emergencies: Analysis of Barriers and Enablers from an Outbreak Response Perspective (SHARE) [open pdf - 4MB]
From the Executive Summary: "Timely access to data during infectious disease outbreaks by those involved in research preparedness and response provides essential input for public health response and for outbreak-related research. [...] Therefore, historical analyses of data sharing practices during past epidemic outbreaks that involved a wide variety of stakeholders were commissioned by the Wellcome Trust and The Department for International Development (DFID) of the UK. Collectively, these aim to provide an overview of critical lessons learned from past experiences and to support the development of sustainable data sharing practices for future research and infectious disease outbreak preparedness. This case study focused on outbreaks of MERS [Middle East Respiratory Syndrome] Coronavirus (MERS-CoV), as a new emerging zoonotic pathogen without a licensed intervention, to provide an in-depth understanding of barriers and enablers to data sharing to such zoonotic emerging infectious disease (EID) outbreaks."
Wellcome Trust; ErasmusMC; National Institute of Public Health; State of Qatar Ministry of Public Health; Athena Institute
Global Research Collaboration for Infectious Disease Preparedness: http://www.glopid-r.org/