ABSTRACT

Precision Medicine Initiative: Data Security Policy Principles and Framework   [open pdf - 391KB]

"The mission of the President's Precision Medicine Initiative (PMI) is to enable a new era of medicine through research, technology, and policies that empower patients, researchers, and providers to work together toward the development of individualized care. Building from the existing PMI Privacy and Trust Principles, this document offers security policy principles and a framework to guide decision-making by organizations conducting or participating in precision medicine activities. Recognizing that there is no 'one size fits all' approach to managing data security, this document provides a broad framework for protecting participants' data and resources in an appropriate and ethical manner that can be tailored to meet organization-specific requirements. This document is for the precision medicine community to use as the basis for their own data security needs. Data security is a constantly evolving field and new threats are identified every day. Over time, these principles and this framework will need to be updated to be responsive to changing circumstances and new threats."

Publisher:United States. White House Office
Date:2016-05-25
Copyright:Public Domain
Retrieved From:White House: http://www.whitehouse.gov/
Format:pdf
Media Type:application/pdf
URL:https://www.hsdl.org/?view&did=797732
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